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Multimedia theatrical dance performance
"My friend's story, the story of many women and men with this disease... is a story that I also dance for their families and is a tribute to Tadeja Polanšček.
Definitely one of the most difficult choreographic tasks for me"
WHY
ME
The theater - dance multimedia performance Why Me is a performance that touches on multiple sclerosis through excerpts from life through the eyes of Tadeja Polanšček, who is fighting this disease. In the foreground is the figure of a woman who is a mother, daughter, friend, wife, but at the same time a prisoner of the disease. Her desire for a "normal" life is extraordinary, she wants to live for her two children, for her husband, and above all for HERSELF!
She hates the disease and at the same time accepts it as a fact. Sometimes she feels trapped and would like to scream out all her pain, anger and helplessness into space, into the air, anywhere... She understands that the disease is a part of her, her body, that it is entangled in all the bonds of her life, but with her defiance and courage she tries drive away everything associated with it.
"You will be my waltz,
my ballet plie
my choreography
and my play.'
(Katja Vidmar, excerpt from the play Why Me)
The topic that spoke to me this time is the story of my friend, the story of many women and men with this disease... it is a story that I also dance for their families and is a tribute to Tadeja. Exploring the feelings of not being able to use legs and/or arms has been one of the most difficult choreographic tasks for me so far, and the creation of the performance therefore has a great emotional charge. Articles, conversations about multiple sclerosis and awareness of how vulnerable we are are the reasons why we want to help the Let's Know Multiple Sclerosis association with the performance Why Me with the proceeds from the sold tickets.
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Shows
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Humanitarian cause
Katja Dance Company has written in its three fundamental articles of operation that I allocate funds from the sale of tickets to humanitarian purposes. Thus, proceeds from the sale of tickets for this performance are donated to the Let's Know Multiple Sclerosis Society.
120
Na leto v Sloveniji presadimo okoli 120 organov. Največ je presaditev ledvic. Vse presaditve organov izvajajo v Centru za transplantacijsko dejavnost v UKC Ljubljana, kjer vrhunski strokovnjaki in strokovnjakinje zagotavljajo najboljše možno zdravljenje, pooperativno oskrbo in doživljenjsko spremljanje bolnikov po presaditvi.
55
V Sloveniji je povprečna starost darovalcev okoli 55 let. V zadnjih 20. letih se je povprečna starost darovalcev dvignila za 10 let.
V 2025 se je do konca novembra glede darovanja organov opredelilo 1061 ljudi.
10
V Sloveniji na leto umre okoli 10 bolnikov. Številka je sicer najmanjša znotraj Eurotransplanta, kjer skupaj letno umre okrog 1300 bolnikov, ki zase pravočasno ne dočakajo primernega organa. Te številke so dokaz, da je darovalcev v vseh državah članicah Eurotransplanta absolutno premalo.
12
Na presaditev ledvice bolniki v povprečju čakajo 12 mesecev, na srce 8 mesecev, na pljuča 6 mesecev in na jetra okoli 3 mesece. V življenjsko ogrožajočih primerih je čakalna doba za srce, pljuča in jetra bistveno krajša, običajno nekaj dni ali tednov.
Vir: Zavod Republike Slovenije za presaditve organov in tkiv Slovenija transplant
O društvu
Slovensko društvo Transplant je prostovoljno, samostojno, nepridobitno združenje, v katero se združujejo bolniki s presajenimi organi in tkivi, njihovi svojci, osebe s področja zdravstva in drugi.
Ustanovljeno je bilo leta 2000 in ima status društva, ki deluje v javnem interesu na področju zdravstvenega varstva (od leta 2002) ter tudi status humanitarne organizacije (od leta 2006). Z ustanovitvijo društva so se povezali ljudje s presajenimi organi, njihovi svojci in strokovnjaki s področja transplantacij. To povezovanje je pomenilo začetek ozaveščanja o darovanju organov, kjer so pacienti po presaditvi prevzeli to vlogo in promovirali pomen darovanja organov ter drug drugemu nudili podporo in pomoč.
Namen delovanja društva je namreč organizirana pomoč bolnikom s presajenimi organi, uveljavljanje kvalitetnega načina življenja in s tem večanje možnosti uspeha transplantacije.
Cilji društva
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vključitev bolnikov, ki so člani društva v socialno okolje in njihova destigmatizacija;
-
informiranje in educiranje bolnikov o življenju po transplantaciji (strokovne in splošne teme);
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rekreativna aktivnost bolnikov, ki so člani društva;
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obveščanje članov o novostih glede transplantacij, zdravstvenega zavarovanja in delovanju društva;
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promoviranje in ozaveščanje širše javnosti o pomembnosti darovanja organov in transplantacije kot najsodobnejše oblike zdravljenja končne odpovedi delovanja organa;
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nudenje psihosocialne podpore in pomoči članom društva pred in po transplantaciji ter njihovim svojcem z namenom krepitve njihove moči, ovrednotenja njihovih doživljanj ter soočenje s spremembami v vsakdanjem življenju, ki jih prinaša transplantacija.
Katja Dance Company has written in its three fundamental articles of operation that I allocate funds from the sale of tickets to humanitarian purposes. Thus, proceeds from the sale of tickets for this performance are donated to the Let's Know Multiple Sclerosis Society.
Vir: Zavod Republike Slovenije za presaditve organov in tkiv Slovenija transplant
Humanitarian cause
Katja Dance Company has written in its three fundamental articles of operation that I allocate funds from the sale of tickets to humanitarian purposes. Thus, proceeds from the sale of tickets for this performance are donated to the Let's Know Multiple Sclerosis Society.
Vir: Zavod Republike Slovenije za presaditve organov in tkiv Slovenija transplant
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